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sleep ? [12-9-09 at 9pm]

fibromyalgia

[midnightcircle]
Hey all-

Is there anyone out there who has had a sleep study done? What were your results?

I had one Friday night, and am waiting to hear, though the tech seemed to suspect apnea...not something i was expecting.
Look how they Shine

My scars are fading... my scabs are healing... [12-9-09 at 7pm]

cuttersselfharm

[isaidmytwocents]
[ mood | content ]
[ music | People telling me to get downstairs ]

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1 Look at the Stars -Look how they Shine

Brain Fog and Chronic Fatigue Syndrome? [12-9-09 at 2pm]

fibromyalgia

[babarian_kat]
Okay, I am about to see my therapist so this might be short. I was tired for years. All through my thirties I had to sleep every day. I did not have the fibro pain I have now, but I have been spacy for a long time. Maybe it's all the medications I take (and don't want to stop taking). But could that account for this very long period of being spacey, not seeing things that are right in front of me, whatever. Because I don't think I'm doing it because I don't care. But then, I don't wear my glasses very often. They fog up, or I'll be wearing the wrong ones (I have near-sighted glasses and far-sighted glasses). So maybe that is proof I really don't care, like Mark says.

Is there a connection between CFS and knocking stuff over, not being able to find things, etc.? And how do I deal with brain fog? Is it brain fog or do I really not give a shit like Mark says? I knocked some coffee over at my program, too. Today. I don't know if brain fog is the cause of all this or if I really don't care about anyone but myself.

Anybody relate to this? Anyone know? I had yeast infections all through my twenties. Over and over. Is there a connection between that and CFS?
Very confused.
8 Look at the Stars -Look how they Shine

Thanks; [12-9-09 at 10pm]

cuttersselfharm

[shonzy_xo]
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4 Look at the Stars -Look how they Shine

Careers While FM is on the Radio [12-9-09 at 4pm]

fibromyalgia

[xlucy_intheskyx]
I graduated college May 2009. There is the stigma that by the time I graduated I would know what to do with my life and have landed a respectible job. I failed at both. I am a sales associate at Dollar Tree. The job takes way too much out of me and I do not even know how I manage to survive my shifts. The only reason I stay is because of my understanding manager. I never like to blame my disease or use it as a crutch, but it has truly sidelined me and consumed the majority of my life. I am worried about my health and concerned in getting better. I am frequently going to see doctors/therapists and now going to a research hospital over 2 hours away from me. I really want to figure out where to go in life. I had aspirations of being a teacher at one point in my life, but the truth is - how am I supposed to teach and care for an entire classroom of children Monday through Friday when I can barely function on my own?! I don't think my physical limitations (and often emotionally instability) would allow for full time work, or more importantly, being an English teacher. I feel like my options are so limited because of my condition. I feel like a complete failure.

How does fibromyalgia impact your careers? What job do you hold? Any advice?

At the moment, I am considering building up my portfolio and webite and taking on freelance jobs so I can work from home. I guess that is a start.
11 Look at the Stars -Look how they Shine

"It usually takes more than three weeks to prepare a good impromptu speech." -Mark Twain [12-9-09 at 2pm]

mollys_home
[ mood | amused ]
[ music | "Well-timed silence hath more eloquence than speech" ]

Today was my very last day of classes.
The last class of Human Diversity was today. For this, our last project, we broke into groups of six and registered for one of the topics. My group and I got "Sexual Minorities: Lesbians and Gays"...(Does that mean a lesbian is not gay?!) The oral presentation was to be for 30-40 minutes. My part was the Beliefs & Stereotypes Throughout History"...most interesting!

Some groups....African American, Asian, Hispanic, and Native American brought in some food from the culture they were covering. One of the students asked my group why we didn't bring food and were told it's harder to apply that to some groups. A student seriously asked me, "Maggie, what do lesbians eat?"

My reply: "I'm not touching that line with a ten foot pole."

Another gal in my group said, "We could have found cookie cutters and brought in cookies shaped like kitty cats."

It's a series of serious presentations but I got a chuckle from the class. They liked that I included the U-Haul Syndrome in my modern-day stereotypes. I had a turtle with a pink hat carrying a house on her back in my Power Point that accompanied our orals. U-Haul Syndrom: Lesbians have the sterotype of being overly anxious to jump into a live-in relationship that they bring a U-Haul to the first date!

One of the facts I presented was that in ancient culture it was believed that semen was a source of strength and knowledge. So the passing of it from man to man was not frowned upon. Briefly it crossed my mind to have a covered tray on the front table and we could whisk the cloth off it and say "Help yourself to some strength and knowledge" and the tray would hold cups of a watered down vanilla pudding. Of course, I have much too much class so I kept my warped creativity to myself!

1 Look at the Stars -Look how they Shine

agreeing w/whomever said this before [12-9-09 at 3pm]

fibromyalgia

[undertheumbrela]
[ mood | sick ]

But i think someone posted before they weren't feeling well and then there fibro flared.
I super duper agree with this now - since I'm sick.
And thank god i was home yesterday bc fibro fog was sever. I couldn't think to talk - like i wanted to say words and they would happen slowly or i would repeat the words over and over..

I'm back at work today - I was feeling alright when i left to come here.. and being here for a bit I'm starting to feel sick again (stomach bugness) - if i go into a fibro fog ill have to go home bc i obviously will not be able to do my job bc im technical support & last time i had it bad it was just a bad day all together..

Look how they Shine

Hold On Tight Honey, It's Gonna Be A Rough Ride... [12-9-09 at 2pm]

cuttersselfharm

[velvetjuliet]
[ music | Lover Dearest - Marianas Trench ]

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6 Look at the Stars -Look how they Shine

[12-9-09 at 6pm]

mind_art

[xeliara]
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2 Look at the Stars -Look how they Shine

any way to find fibro friendly shrinks? [12-9-09 at 12pm]

fibromyalgia

[newsunlily]
my shrink is stopping his out patient practice with no notice and i need a new one but am scared of getting one that doesnt believe in fibro and will think im bs'ing about being disabled.. is there any sites out there that would be able to point me in the right direction? my last shrink knew a lot about fibro and really was the key to getting disability on it and other things and i have tried the rate my doctor sites and no one in my area is really listed on them =( last time i had to find a new shrink it took me a month to find anyone.. im so scared!!
14 Look at the Stars -Look how they Shine

[12-9-09 at 10am]

fibromyalgia

[babarian_kat]
I really can't deal with this anymore. He just does this to me sometimes and then anything I say is wrong because he is sure that if I make a mistake it's because I don't care enough about anyone but myself to notice things. I knocked over a glass of his wine last night (the end of the bottle that's been around since Thanksgiving), and he goes back into this "all you ever do is make mistakes, and it's been like this for fifteen years, and you don't care about anyone but yourself". And then I give what I think of as reasons why I do care and it should be obvious, and he just gets meaner and meaner because all of my reasons are excuses to him. And he calls me disgusting and things like that, and I don't know why I didn't see the wine. I never know.
Now he's arguing with me. He wants to know what I'm writing. I can't keep going he's really being a dick today.
14 Look at the Stars -Look how they Shine

[12-9-09 at 11am]

cuttersselfharm

[savemeloveme]
[ mood | confused ]

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1 Look at the Stars -Look how they Shine

For My Mother [12-9-09 at 12pm]

poems

[alessandra_lee]
For My Mother )
Look how they Shine

surprise vacation? [12-9-09 at 8am]

fibromyalgia

[albinoqueen76]
I was thinking about surprising my husband for our 1 year anniversary (still 9 months away!) with a trip to Disney. If I am going to do that I need to start putting money aside now. I started to think about what that might mean for my fibro and flares. I'm looking to ya'll who always are so insightful and knowledgeful to help me out.
Does extended travel bring on flares?
Anyone have personal experience of going to Disney since their fibro began?
Does anyone know, when traveling or at amusement parks, what kind of proof people need for you to get help with mobility?

Thanks for any info ya'll can give me or experiences you can share!
MaRissa
15 Look at the Stars -Look how they Shine

[12-8-09 at 11pm]

girlunheard
Automatically shipped by LoudTwitter
Look how they Shine

[12-8-09 at 8pm]

cuttersselfharm

[savemeloveme]
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Look how they Shine

New Member And a Drawing [12-8-09 at 7pm]

mind_art

[xcircus_freakx]
[ mood | accomplished ]

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2 Look at the Stars -Look how they Shine

i'm just terrible, aren't i? :) [12-8-09 at 8pm]

princess_eowyn

i'm doing christmas shopping online right now. so will someone please tell me why most of the things i've picked up so far are for me? :D

Look how they Shine

[12-8-09 at 5pm]

cuttersselfharm

[pinkxbubblesx]
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3 Look at the Stars -Look how they Shine

[12-8-09 at 8am]

fibromyalgia

[albinoqueen76]
I'm crabby. I have had random hives for the past 2 days. I hurt EVERYWHERE. I cant stay awake. I cant sleep more then 30 minutes at a time. No matter how high the heat is or how many blankets I am wrapped up in, I am freezing.
God! I love having fibro!! It is the wonderful gift that just keeps on giving!
7 Look at the Stars -Look how they Shine

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